NORTH --  Local singers and choirs will be lifting up their voices and prayers at North United Methodist Church on May 19 in support of a 1-year-old child who needs a kidney transplant.

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"Songs for Saylor" will be held from 4:30 to 6:30 p.m. Sunday, May 19, at North United Methodist Church. After music from singers and choirs, a silent auction will be held in the church fellowship hall, where refreshments will also be served.

North couple William and Stephanie Robinson are the parents of Saylor, who was diagnosed at 6 weeks of age with a rare kidney disease known as congenital nephrotic syndrome. Saylor's kidneys did not filter properly and required her to undergo a surgery to have them both removed.

She is currently on dialysis 12 hours a night and requires several daily medications. Her family's ultimate goal is to have her undergo a kidney transplant within the next six months.

In the meantime, her mother said Saylor is maintaining her sweet, friendly spirit.

"She is honestly the best baby. She is always happy. When we hired a nanny, I remember telling her that if Saylor is crying, then she's tired or hungry because there's usually no other reason that she cries about anything," Stephanie said.

"She's really social. She loves everybody and thinks everything is funny. Even if she wouldn't have had all of these issues, she would have been the best baby. She has a spirit like no one else, and she really attracts people. People just seem to really love her," she said.

A love offering will be collected during the event. Silent auction items include, but are not limited to, the following: a nature walk anywhere in the Midlands with naturalist Rudy Mancke for 25 people; a queen mattress and neutral floral upholstered chair from North Furniture; a pond-side dinner for 12; a one-day hunting expedition at Midway Farm; and assorted fern planters.

Stephanie said Saylor is "doing the best that she has ever been since birth right now." She and her family are also thankful for all the support they've received from friends, family and other individuals they don't even know.

"We're extremely thankful. I don't know that we would have made it this far with our sanity without all the people who rallied around and helped us. We've gotten cards and letters and texts from people who we've never met, from churches we've never attended, from just all over the place in different counties and states, even," she said.

"We've had good friends, our families and people who have never even met us or Saylor send cards and donations and all sorts of things. It's really been an eye-opener for us as far as the fact that there really is still some good in the world," Stephanie added.

Saylor's paternal grandfather, Billy Robinson, said he is also grateful for all the support his family has received amid his granddaughter's health challenge.

"It's a terrible thing that's affected our family, but it's a wonderful and beautiful thing to see how people have rallied and come around her and the outpouring of love and support from not just our community in North, but all throughout Orangeburg County, the state and several other states," he said.

He added, "Even in some other places in the world, they've put her on prayer chains and such. It's part of walking in faith. The more you do it, the more God shows you he does care and loves you and carries you through it. He sends people to carry you through times. People have really been wonderful, and we really appreciate it."

For more information on the May 19 event, contact Brian Drew at 803-378-5122 or Bette Inglett at 803-206-8362.

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Contact the writer: dgleaton@timesanddemocrat.com or 803-533-5534. Follow "Good News with Gleaton" on Twitter at @DionneTandD


Staff Writer

Dionne Gleaton has been a staff writer with The T&D for 20 years. She has been an education reporter, regional reporter and currently writes features with an emphasis on health.

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